Imagine a world where your own body turns against you, attacking itself. This is the reality for those battling Lupus, a chronic autoimmune disease that can impact nearly every part of the body. Recently, the Lupus Remedies Global Support Foundation made a heartfelt plea to the Lagos State government, aiming to improve the lives of those affected by this challenging condition.
During the 'Invisible Disabilities Week' celebration, held at the Lagos Chambers of Commerce and Industry (LCCI), the foundation's Director of Organisation, Fausat Sanusi, highlighted the urgent need for support. The event, themed 'Unmasking Lupus: Shining Light on Hope and Resilience,' aimed to provide solace and a sense of belonging to Lupus patients.
Sanusi's dedication to giving hope to Lupus patients is truly inspiring. She described Lupus, scientifically known as Systemic Lupus Erythematosus (SLE), as a condition where the immune system mistakenly attacks healthy tissues and organs, leading to widespread inflammation. This can manifest in various ways, affecting joints, skin, kidneys, blood cells, the brain, heart, and lungs. The symptoms often come in cycles, with periods of flare-ups and remission, making it a constant battle for those living with it.
Sanusi's vision extends beyond simply raising awareness; she dreams of a community where Lupus patients can thrive and contribute to society. She emphasized the importance of government support and public education, stressing that a Lupus diagnosis is not a life sentence.
And this is the part most people miss... The foundation, which started with just 20 members four years ago, has grown exponentially. It now supports approximately 5,000 people globally, with a physical presence of about 2,500 individuals across various hospitals in and outside Lagos. This remarkable growth underscores the critical need for continued support and resources.
Adenike Lawal, the General Manager for the Lagos State Office for Disability Affairs (LASODA), affirmed the state government's commitment to supporting people with disabilities. Dr. Olufemi Adelowo also pointed out the significant lack of awareness surrounding Lupus, emphasizing that while it is a chronic disease with no cure, it can be managed effectively.
But here's where it gets controversial... While the focus is on support and management, the absence of a cure raises questions about long-term care and the resources required. What further steps can be taken to improve the quality of life for Lupus patients? What innovative approaches can be implemented to raise awareness and provide comprehensive support? Share your thoughts in the comments below!
